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Why the Stakes Are So High

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(March 21, 2013) Among the critical contributions we make to mental illness policy reform is testifying in support of pending legislation that would make treatment possible for more individuals in psychiatric crisis.

gavelThe following excerpt from testimony delivered this week by Policy Director Brian Stettin relates to a bill pending in Maryland that would improve the inpatient commitment standard. The case he makes, however, is relevant to public policies that affect individuals and families living with untreated severe mental illness from coast to coast.

First and foremost, I would like to point out why the stakes are so high for the families here today and the thousands of Marylanders they represent.

These families are keenly aware of the enormous strides that medical science has made in recent decades to offer real hope of recovery to people with severe mental illness. The key, of course, is to get those individuals under medical treatment.

We know, for example, that people who are receiving treatment for a severe mental illness are no more likely to engage in violence than anyone else and that treatment is the key to maintaining strong bonds with friends and family, as well as to avoiding hospitals and jail. 

But securing that treatment for a family member in psychiatric crisis can be harrowingly difficult. A primary reason for that is anosognosia, a symptom of brain dysfunction which afflicts many – though by no means all – people with schizophrenia and severe bipolar disorder. A person with anosognosia is simply unable to recognize his own illness – no matter how painfully obvious it may be to everyone around him. The person is convinced to the core that he is perfectly fine. And so, quite naturally, he rejects all efforts to get him into treatment.  

That is what the families here today are grappling with – watching the people they love fall apart, truly unable to seek voluntary help or accept it when offered, because their diseases prevent them from seeing that anything is amiss. Which, I hasten to add, is not to say that they are perfectly happy in their current condition. On the contrary, many lead lives of daily torment, with no way to escape terrifying delusions.

And so at some point, we as a society must decide what we’re going to do: either leave the person to face the consequences of that “choice” to refuse treatment or to override that “choice,” as we might hope others would do for us if we were to come untethered from reality.

And this is where Maryland’s civil commitment law comes into the picture.

This is where every state’s civil commitment laws come into the picture. Advocates anywhere are encouraged to adapt the message for their own use in promoting treatment law reform and implementation.

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"What It’s Like to Have Schizophrenia"

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(Mar. 20, 2013) Lisa Halpern’s “What It’s Like to Have Schizophrenia” is a don’t-miss article for all of us who live or work with severe mental illness and have yearned for hope when things seemed hopeless.

lisa_halpern“I was in high school when I started hearing the voices. I was picked to give a graduation speech, but I thought I heard people talking about how they didn't want me to give the speech,” she writes ” in the March 2013 issue of Ladies Home Journal.

Sound familiar?  

“My mental abilities were slipping…

“Soon I could no longer do the most basic things, like read and write, wash dishes, or take a shower….

“I'd only been seeing him for a couple of weeks when I hit rock bottom: My voices told me to kill myself…,” Lisa writes.

But she didn’t.

Here’s the whole story in her words.

If you have a treatment success story we can share, please send it to us at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

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Parents Beg, ‘Maryland Laws Need to Change’

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(Mar. 18, 2013) Paul Smith is mentally ill and in a maximum security prison in Maryland. Because of his inability to conform to prison rules, he’s been in solitary confinement for the last four years. In other words, behavior driven by mental illness is keeping him in solitary confinement, and solitary confinement is only exacerbating his mental illness.

paul_smith_dadSmith’s parents described this cruel Catch 22 in a WUSA-9 interview March 12. “As far as we know, he is not receiving any treatment,” Paul’s father, Mike Smith, said.

Take this as further evidence - as if we needed it - that correctional settings are utterly unsuitable for people with significant mental health needs. And yet after decades of deinstitutionalization and rigid interpretation of state commitment laws, there are today more than three times as many people with severe mental illness in America’s jails and prisons than in mental hospitals.

Paul Smith’s parents believe their son - serving 20 years for a series of unarmed home burglaries - would not be in prison at all if Maryland law had not made it so difficult for them to commit him to treatment when he turned 18 and stopped taking his medication.

As we have said before, Maryland is one of the worst places to be mentally ill and unable to recognize it.

But there is reason to hope that other Marylanders will avoid Paul Smith’s fate. A bill currently pending in the Maryland legislature would broaden civil commitment criteria to cover individuals with untreated severe mental illness who cannot meet their basic survival needs without assistance, regardless of whether they are demonstrably violent or suicidal. 

The Treatment Advocacy Center is hard at work for its passage.

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Families of the Mentally Ill Become Accustomed to Suffering in Silence – personally speaking

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(Mar. 15, 2013) We are all familiar with the moments in our lives that stop us in our tracks and forever change our reality. On Jan. 3, 1999, Kendra Webdale was pushed to her death in front of a subway train by a complete stranger who was unable to avoid the compulsions of his schizophrenia that made Kendra the victim of his violent psychosis.  

kinzel_momI still cringe when I remind myself that he had been recently released from a psychiatric center. Many of my friends who took the subway to and from work astonished, “it could have been me.”  

Meanwhile, I silently suffered the devastating reality that this could have been my mom. The only thing I could do was reaffirm my commitment to protecting mom and everyone else from the dangers of her bipolar schizophrenia. Because of her mental illness, she had already inflicted harm to herself and others, and had come dangerously close to crossing the line that Kendra’s attacker crossed.

Families of the dangerously mentally ill become accustomed to isolation and suffering in silence. Life becomes a challenge of constantly waiting for the other shoe to drop and wondering when the next episode will happen.

I could not figure out why my mother’s irrational behavior was not enough for the police to put her in the ambulance and take her to the hospital. The police saw that we were scared. They knew my mother put us in danger when my father was not in town. I could tell the police officers were afraid for us. When they came, I made them promise they wouldn’t leave. Nevertheless, they acted like their hands were tied. 

Finally, during one particularly bad episode, I distinctly remember a police officer asking, “Has your mommy hurt or threatened to hurt you or your brothers? “No,” I said honestly. The trooper was relentless. For what seemed like hours, she repeated the same question and I continued to answer honestly.  

Finally, exhausted, I realized what the police officer was prompting me to say. “My mommy threatened to hurt me,” I said. I’ll never forget the look of betrayal on my mother’s face and the profound sense of guilt I felt the first time I said it. As a young girl, I tried to make myself feel better about destroying our relationship by convincing myself that lying to the police got mom help and kept the family safe. Even at a young age I was aware that this was the only way to get my mother treatment.

Almost 10 years after Kendra’s death, I contacted an attorney in New York who informed me about Kendra’s Law.  

Kendra’s Law, the assisted outpatient treatment process in New York, was invaluable to my mother’s treatment and our family’s peace of mind. No longer would mom be released from a psychiatric center to live on her own and hope for the best. The AOT process required a supervised residential setting for her. Instead of waiting for her to break a law before she could receive treatment, when mom refused to take her medication she was readmitted into the psychiatric center.

Mom passed away in her sleep, at 60 years old. Along with the despair of losing my mother is the relief that I no longer have to battle her mental illness to keep everyone safe from the consequences of her psychotic breaks. It is a sad reality that many families still suffer through in silence.

Now that my mother has passed, many people ask me why I continue to share her story. I explain that the little girl who had to betray her mother in such a profound and permanent way to navigate a broken mental health system is still here. No family member should be put in such a position. Laws need to support the relationships between people with mental illness and their families, not sabotage them.

Michele Kinzel

Kinzel is the daughter of a woman who suffered from bipolar schizophrenia and a beneficiary of Kendra's Law. She lives in New York. 

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AOT instead of Jail in Tennessee

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(Mar. 14, 2013) In a state where nearly a quarter of a million people live with mental illness, a pilot program was created to test assisted outpatient treatment in Tennessee, which is currently one of six states that does not allow mandatory commitment for people with serious mental illness.

prison_mental_illnessThe hope is to keep mentally ill patients out of the hospital, out of jail and out of trouble. But “[f]or some, the program has come too late,” wrote Joan Garret in the Times Free Press (“Mentally ill offered new path for care,” Mar. 5).

Because of state funding cuts for mental health services, which are under reconsideration by some states, “most states are suffering from a glut of mentally ill inmates in jails and prisons and shrinking hospital systems.” For example, the “Hamilton County Jail spends more than $6,000 a month on mentally ill inmates, who comprise 45 percent of its population.”

"Assisted outpatient treatment doesn't wait for a person to commit a crime," said Brian Stettin, policy director for the Treatment Advocacy Center, who spoke to the Times Free Press about why outpatient commitment is a valuable tool to help those who are too sick to help themselves.

At the Treatment Advocacy Center, we say that if we can get someone into treatment before they go to jail; it will be a lot less expensive in the long run. And, in fact, there are reports and studies that demonstrate that long-term AOT actually saves money. For the sake of those who are suffering needlessly in jail, and because of straining state budgets, we hope this program is expanded to cover more counties across the state.

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